Celine Dion, the renowned Canadian singer, has revealed in a series of interviews that she is living with Stiff Person Syndrome (SPS), a rare neurological disorder. In her conversations with Hoda Kotb on NBC's Today show and other media outlets, Dion described the condition as feeling like 'somebody is strangling you' when she tries to sing or speak.
Stiff Person Syndrome causes severe muscle spasms that can affect various parts of the body, including the throat. This makes it difficult for individuals with SPS to control their voices and enunciate words clearly. For Dion, this condition has significantly impacted her singing career.
The singer first began experiencing symptoms in 2008 while on tour but was not diagnosed until 2022. Since then, she has had to cancel her Las Vegas residency and recent Courage World Tour due to the debilitating effects of SPS. Dion receives therapy five days a week for the condition and is unsure if she will be able to perform again.
SPS affects approximately one-to-two people out of every million, according to the National Institute of Neurological Disorders and Stroke. Symptoms include rigidity in the torso and limbs, as well as severe muscle spasms that can cause falls. The spasms can occur at random or be triggered by certain stimuli, including loud noises, touch, and emotional distress.
Despite the challenges she faces with SPS, Dion remains optimistic and continues to share her story in hopes of raising awareness about this little-known condition. Her documentary 'I Am: Celine Dion,' which will be released on Amazon Prime Video on June 25, offers a glimpse into her life with SPS and the impact it has had on her career.